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What helps others — with Long COVID, ME/CFS & POTS
People with Long COVID, ME/CFS and POTS log what they tried and how they felt afterwards. Here you can see what went together with better values across many people. Everything is pseudonymous. This is an observation, not a recommendation.
No one is individually identifiable. Only the shared pattern counts: numbers appear only from at least 10 people per group.
Join in — the more people, the clearer the patterns.
Everything here comes only from voluntary, pseudonymized data. Nothing is passed on to external companies — it's used solely to improve mypacing. Figures only appear once enough people have contributed that no one is identifiable. The more of your own data you add, the sharper the patterns become — for you too.
Upload new data
Everything here comes only from voluntary, pseudonymized data. Nothing is passed on to external companies — it's used solely to improve mypacing. Figures only appear once enough people have contributed that no one is identifiable. The more of your own data you add, the sharper the patterns become — for you too.
Upload new data
Important: A lot of what appears here (e.g. medications) is off-label or experimental. Always discuss with your doctor whether something is right for you. Correlation is not causation — what helped many people may work differently for you.
What is known about pacing apps — including the uncomfortable part.
We write down here what research says about applications like this one. Including where it speaks against us.
- The largest controlled trial of exactly this approach is negative. A pacing app with a fitness band and just-in-time prompts showed no difference in post-exertional worsening across 250 people, compared with a plain logging app (Nature Communications, 2 Feb 2026). A review from the same year likewise found no added benefit over usual care across six months (PLOS Digital Health 2026).
- There is no validated method that detects post-exertional worsening from wearable data. Not ours, and nobody else's. Anyone promising that is promising more than is currently established.
- Heart rate variability (HRV) is not a gauge of your nervous system. Across groups the value is lower in ME/CFS and Long COVID; for an individual, nothing can be predicted from it. Current professional guidance explicitly rules out reading it as a "balance between tension and rest" (American Journal of Physiology – Heart, 2026).
- What is supported: that self-monitoring is safe and feasible, and that people describe it as helpful for their own sense of control. The UK guideline NICE NG206 explicitly names activity trackers, phone heart-rate monitors and a diary as suitable self-monitoring tools (recommendation 1.11.7) — and says in the same chapter that patients are the experts on their own limits (1.11.2).
What that means for mypacing. mypacing records and shows. It does not predict, it does not detect illness, and it does not promise to prevent crashes. What follows from what you see here is your decision — on your own, or with your doctor.
mypacing is not a medical device and does not provide a diagnosis. All figures are aggregated, pseudonymous self-observations (minimum group size, k-anonymity) — not a study, not a treatment recommendation. In an emergency, call your local emergency number. · © 2026 mypacing · Stay at your own pace. mypacing is a trademark application on file with the German Patent and Trade Mark Office (DPMA), Ref. No. 302026242304.3.