Pacing Tool for ME/CFS, Long COVID, POTS

A project that helps people with these conditions understand and record their own exertion.

    Vision: People affected should understand their body better without overexerting themselves. A tool for self-observation, not a diagnosis.
  

What mypacing offers

Pacing calculator

Instant, no login. A rough, non-binding orientation for daily activity duration from resting heart rate and symptom precursors.

Personal tracking

Heart-rate data or manual entries. Shows patterns before crashes — so you can plan rest ahead of time.

Stand test (POTS)

Guided NASA lean test. Result as a finding for your doctor's visit. No equipment needed.

Doctor's report

Exportable, printable. Includes pacing data and Bell score — a tool for clinical conversations.

Privacy & security

GDPR Art.9 Health data only with explicit consent
Encrypted In transit and in storage; pseudonymous from upload onwards
Private Operated in Germany/EU (ALL-INKL). Never sold, never shared with third parties.
Free Funded by voluntary contributions. No business model built on health data.
Deletable Everything can be deleted at any time. Uploaded files are not kept after the analysis.

Scientific basis

Heart-rate pacing: a medically determined value, otherwise the measured resting-heart-rate median + 15 as a rule of thumb (a Workwell Foundation rule of thumb, tested in no study — derivation on /en/technik.html)
Post-exertional malaise (PEM): starts with a delay, usually 24 to 72 h later — visible in the HRV trend and in the check-in
Everyday-capacity questionnaire (FUNCAP): peer-reviewed, in two versions (27 questions for tracking, 55 in full)
No predictions: honest about limits. Build-up patterns yes, reliable forecasts no.

Devices & integration

Available: Garmin, Apple Health, Whoop, ResMed CPAP, Visible (automatic); Fitbit, Oura, Withings, Polar (manual review)
Not possible yet: direct account linking. Planned for Garmin, Fitbit/Google, Oura, Withings, Polar, Whoop, Suunto and COROS — with no date.
Without a watch: daily entries by hand are enough. Your own perception is the strongest sensor.

For clinics & rehab

✓ Link from your website, recommend as part of discharge management
✓ Doctor's report as a self-observation tool in pacing education
✓ Stand test as a standardised self-assessment when POTS is suspected — not a diagnostic procedure
✓ Pseudonymous research data, only with explicit consent — released only from at least 10 people per group

For researchers & organisations

✓ Everyday data on ME/CFS, Long COVID and POTS (exertion limits, PEM triggers, HRV response)
✓ Structured access to FUNCAP values, stand-test results and symptom entries
✓ Aggregated group analyses for research — never individual people