Pacing Tool for ME/CFS, Long COVID, POTS
A project that helps patients understand their exertion limits and prevent crashes.
Vision: People affected should understand their body better without overexerting themselves. A tool for self-observation, not a diagnosis.
What mypacing offers
Pacing calculator
Instant, no login. Determines a safe daily activity duration based on resting heart rate and symptom precursors.
Personal tracking
Heart-rate data or manual entries. Shows patterns before crashes — so you can plan rest ahead of time.
Stand test (POTS)
Guided NASA lean test. Result as a finding for your doctor's visit. No equipment needed.
Doctor's report
Exportable, printable. Includes pacing data and Bell score — a tool for clinical conversations.
Privacy & security
- GDPR Art.9 Health data only with explicit consent
- Encrypted At rest and in transit; pseudonymisation on import
- Private Operated in Germany/EU (ALL-INKL). Never sold, never shared with third parties.
- Free Funded by donations. No business model based on user data.
- Deletable Users can delete everything at any time. Raw file archives are not retained after processing.
Scientific basis
- Heart-rate pacing: resting heart rate + 15 as a rule of thumb (NICE NG206, Workwell Foundation)
- PEM timing: delayed onset (24–72 h) detected via HRV tracking and symptom diary
- FUNCAP questionnaire: 55-item assessment of functional capacity (peer-reviewed)
- No predictions: honest about limits. Build-up patterns yes, reliable forecasts no.
Devices & integration
- Live: Garmin, Apple Health, Whoop, Oura, Withings, Polar (CSV), ResMed CPAP
- In preparation: direct account linking for Fitbit, Google Health Connect, Suunto, COROS and others
- Without a wearable: manual daily entries are enough. The symptom diary is the strongest sensor.
For clinics & rehab
- ✓ Link from your website, recommend as part of discharge management
- ✓ Doctor's report as a self-observation tool within pacing education
- ✓ Stand test as a standardised self-assessment for POTS diagnostics
- ✓ Anonymised research data on an opt-in basis (k-anonymity: min. 20 people)
For researchers & organisations
- ✓ Real-world data on ME/CFS, Long COVID and POTS patterns (pacing limits, PEM triggers, HRV response)
- ✓ Structured access to FUNCAP scores, stand-test results, symptom logs
- ✓ k-anonymized cohort reports for epidemiological & therapeutic research